hidradenitis suppurativa
Posted: March 5th, 2013, 8:47 am
I came out of a really good relationship about two years ago now, I guess. The end was a rational smart choice, so when we parted ways it wasn't because how we felt for each other had in any way waned. There was no resentment, or hard feelings, or anything like that. That's a hard ending, and for me that took time to get over. I took a deliberate break from dating.
While on that break a genetic disorder made itself manifest. My immune system, my sweat glands and my skin no longer get along. For now it's localized under my arms, it looks like scar tissue, sometimes inflamed, sometimes with abscesses, sometimes seeping, sometimes merely receding. Those absesses are the source of the scars. Over the next decade or two this is going to become worse before it'll likely mutate to skin cancer and become fatal. There is a laser treatment, where the skin and the underlying tissue is burned off, and then covered with skin grafts, but that's not fix, nor is that really a sight to behold. Because it's a genetic disorder that just deals with the symptoms, which return. There is no cure. They're not even sure that it's a genetic disorder. It's just the most educated guess, really. It took me a while, but I accept that now. That this has happened, and I have to deal with it, somehow.
How far do I go adapting my life plans to this new situation? Children are out. I'm not going to risk passing this on.
But a decade or two is a long time. Coming straight to the point, largely I don't feel worthy of love anymore. It's disgusting. It's repulsive. That is what my body has become, and will become more so.
Typing it out now, I know what the right approach to this is.
"You can't meet anyone if you don't risk rejection", I tell myself.
It goes so deep now, though. It's not just rejection, now. Rejection isn't really about worthiness, it's about compatibility, timing, it's a bit of gamble, always. Now, to me, it's a confirmation of worthlessness, a confirmation of no longer being a part of that aspect of the human experience, and that is scary. Diseased, with no biological imperative on my side. On the contrary. Being repulsed is a natural and even healthy reaction to disease. That's tough to confront. Real tough.
"If you are going to let fear dictate your life you might as well just lay down and die now".
Oh, shut up myself. You're not helping.
So, that's the situation. Any words of advice?
While on that break a genetic disorder made itself manifest. My immune system, my sweat glands and my skin no longer get along. For now it's localized under my arms, it looks like scar tissue, sometimes inflamed, sometimes with abscesses, sometimes seeping, sometimes merely receding. Those absesses are the source of the scars. Over the next decade or two this is going to become worse before it'll likely mutate to skin cancer and become fatal. There is a laser treatment, where the skin and the underlying tissue is burned off, and then covered with skin grafts, but that's not fix, nor is that really a sight to behold. Because it's a genetic disorder that just deals with the symptoms, which return. There is no cure. They're not even sure that it's a genetic disorder. It's just the most educated guess, really. It took me a while, but I accept that now. That this has happened, and I have to deal with it, somehow.
How far do I go adapting my life plans to this new situation? Children are out. I'm not going to risk passing this on.
But a decade or two is a long time. Coming straight to the point, largely I don't feel worthy of love anymore. It's disgusting. It's repulsive. That is what my body has become, and will become more so.
Typing it out now, I know what the right approach to this is.
"You can't meet anyone if you don't risk rejection", I tell myself.
It goes so deep now, though. It's not just rejection, now. Rejection isn't really about worthiness, it's about compatibility, timing, it's a bit of gamble, always. Now, to me, it's a confirmation of worthlessness, a confirmation of no longer being a part of that aspect of the human experience, and that is scary. Diseased, with no biological imperative on my side. On the contrary. Being repulsed is a natural and even healthy reaction to disease. That's tough to confront. Real tough.
"If you are going to let fear dictate your life you might as well just lay down and die now".
Oh, shut up myself. You're not helping.
So, that's the situation. Any words of advice?